Thursday 4th April: 🙄 What can I say, this is the first time in just over a week I have been able to function properly, I gradually went from bad to worse, my joints swelled, my muscles were all inflamed, I had chronic pain and I felt really lousy, freezing cold and very sleepy. Luckily I already had an upcoming appointment at the hospital, so I called the doctor to get some blood tests done ready and yes the Lupus is flaring, no idea why as I was really well last week. Anyway I have had a complete overhaul of meds plus am back on the steroids for a while so hopefully that should sort it all out, it’s only day one and already feel more ‘normal’ and able.
Not everyone is a fan of steroids but here is my take on them, my condition, Lupus, when it flares, is chronic, at the worst point no amount of alternative therapy/food/diets etc is going to help (I do think however that following these as a life plan helps to keep you well the majority of the time) and taking steroids is my choice, I am given the choice by the experts who probably hope I’m going to say yes but allow me the choice to decline if I want to. The reason I say yes is this, personally I would rather spend 10 years on steroids have a good quality of life and be able to do all the things I love doing and enjoy doing them rather than 20 declining years of a half life of pain, misery and isolation, that’s my take on it, not everyone’s view and I respect that but that’s how I approach it, and I admit I take a calculated risk because I am 55 this year, if I was only 25 (sigh) I may not make the same choice. Someone once said to me ‘you are very philosophical about it’ well I think you have to be, when you have a long term illness especially if it’s chronic it’s very easy to become a ‘victim’ of that illness so I try not to and I think a positive outlook is half the battle 😀
And while I am on a roll I would just like to say what a fantastic service we have with our NHS not just in this instance but throughout my life I have had the comfort of knowing that myself and my family are in the best possible hands in times of need, we take it for granted and sometimes forget what life would be like without it, yes there are problems and waiting times but hells bells imagine if it wasn’t there at all 😣
I’m trying to remember what has happened in my ‘missing’ days, we have had a hatch and have 12 light Sussex chicks 🐥 today we also took in three chicks that Joshua’s Nursery has hatched out 😀 Sarah, Ben and Bin apparently lol. I’m hoping Josh will help look after them as they grow and learn about cleaning them out and feeding them etc. We have welcomed another great niece into the wider family and have learnt that our grandchild twins will be one of each 💙💕 which will be good for family dynamics, Mothers and babies in both circumstances doing well 😀

Josh and his chicks
The rain we really need has arrived though it has bought the cold with it as well, hopefully it won’t hang around too long as Easter Holidays are starting and parents could probably do with some nice weather just as much as gardeners 😜
One of the geese has started sitting, she won’t come out now and so that’s the end of the goose eggs for sale as you won’t catch me trying to get her out with the others all standing guard!
I have therapy tonight with the truly wonderful Annette 😀 I think I will opt for a massage rather than Bowen, my shoulders and jaw need ‘loosening’ I tend to hunch my shoulders and clench my jaw with pain and I was also feeling the cold acutely, piles of blankets and a hot water bottle 😀
In the end I listened to Annette’s advice who said that Bowen, working with the body, would be better at this point in time than massage, which is working against it, so Bowen it was.
Friday: Wet and windy over night so not a pleasant morning still a tad cold too. We have lost a couple of hens over night or early this morning. The worrying thing is that this is yet again over the mains electric fencing, it seems one of the windows has caved in due to the wind probably, the hens probably flew out through the window first light and the fox has taken the opportunity to nab breakfast. These are the new lot and have just started laying ☹️ John will have to put something over the window to stop them getting out but it still means the fox is prepared to jump the electric fence 🙄
On the upside every day I feel a lot better than the last few days so that’s good 😀
A couple of weeks back I was searching in vain for around 10/15 pol ducks, they are pretty hard to come by in and around our area. I did a bit more searching and thinking and finally put in an order for 51 day old khaki Campbell female ducklings 😲 that way I’m guaranteed females and guaranteed their age, buying ducks is a bit of a lottery we have found in the past. They will be arriving in the first week of May and I’m hoping to sell a few on pretty quickly lol otherwise there will be A LOT of duck eggs in the shed eventually.
I did a bit today not too much just some essentials, the turnip seedlings needed potting on so I got three trays of those done, some important paperwork that needed to be got together, feeding the rabbits, collecting the light Sussex eggs, light the Rayburn, sounds easy but one of my knees is not bearing weight just yet and you’d be surprised at how much kneeling down needs doing daily 😂 most other parts of me are working well again now though so that’s good and definitely no more pain so that is excellent!
Saturday: We did the morning stuff then John went off to get feed and I tried getting a couple of things done but one of them including sawing and my hands just won’t do the job, I tried the chop saw but the wood did not fit, got frustrated about that will have to wait for John to come back and do it. I was trying to make a low run for feeding the tortoises, one the hens can’t get into ☹️. I also need to find the key to the very back door but unbelievably we dont seem to have any! I am assuming we had two and thought John would have one, the other was hidden for the liveries to use but I have no idea where it is and so we have none at the moment, I wanted to be able to shut the door behind me so that the hens can’t get in as they are knocking everything down off shelves and crapping over everything, I think my stress levels are a bit high today 😝 Shelley came over and we chose our runners in the Grand National later when we will all sit/stand/jump/cheer loudly for our horses 🐎 John went to put the bets on, I’m not using the app again as last year although I won I couldn’t find out for over 2 hours as I locked myself out of the app and then found I had put the bet on three times by accident lol, I won three times as much though 😜 but it’s a bitter sweet thing when the money transactions are just digital and not readies in your hand so we are opting to put the fun back in it this year and go with the cash to the bookies 😁
John came back and made a thing for the tortoises to eat under out of a pallet, then I found a key to the back doors but the lock wouldn’t work so John took it apart, hit it with a hammer and now it does, sometimes there is no skill needed just brute force 😜 Then everyone came over to watch the Grand National, that was a chaotic, noisy affair and great fun, Charlie and I had the winner, I didn’t realise when I picked it but it’s the same horse I had last year that has now won two years running 😀 shame I didn’t accidentally back it three times this year 🤣🤣
Inbetween all the chaos a hen was stuck in the electric fence, Martin noticed Patch out in the paddock which is unusual unless there is someone out there, I looked and could see the hen which is why patch was there, it pays to know your dogs well as the signs that something isn’t normal are easy to spot then. Hen rescued, race watched, monies won, John went off to collect winnings and pick up fish and chips on the way home while I lit the Rayburn, everyone else went home, quiet resumed 😜
The chicks are doing well, we have only had one death, not bad, usually get a couple, six of the eggs didn’t even pip, I haven’t checked them yet but I will just to see what stage they had got to before dying in the shell. If they had pipped I might be inclined to help them but with no external pip there is no point, weak chicks will die anyway ☹️
Sunday: Not a bad day weather wise, we got the morning stuff done then John went to visit his Mum and by 9am I was hoovering and cleaning. I’ve had a pretty good day, not in terms of wellness because I’ve been a bit tired but I still ploughed on and got some stuff done. I did have a rest after the cleaning lol, I thought I was up to a good clean but soon realised I wasn’t 😕 After resting I went out I to the polytunnel to do a few bits, I actually can’t remember what now but I did something 😜 I have covered the asparagus over with wire because I think the hens might be eating it as it comes up, they are eating everything at the moment and so covering is a priority task! During the afternoon I asked John to reconnect the water pipes up from the tap to the garden, we soon found some splits in the pipe and had to go and get the pipe cutters which he had left round at Shelleys. On the way back we called into Mums and she had a few plants for me. I have been trying to get some plants/shrubs growing in the duck area and so I got busy planting them in there, also having to protect everything that was planted, from the ducks. The area is just mud, it was grass when they first moved in a few years ago but gradually became a mud area, at the end of last year I planted a willow whip and a forsythia both have done well and survived so I wanted a few more things to go in there. If I can keep them growing and stop the ducks from trashing it there will be a nice little shrubbery for them to hide under. John has been busy loading wood, fixing the hen house, a bit had fallen off, feeding the afternoon feed, collecting eggs, fixing water pipes for me and then got called out to an emergency leak, not his I’ll add but a customer who lives in a flat and the upstairs flat had a water leak so it was coming through to hers, the chap upstairs could not get another plumber to come out so John went.
Tomorrow I start my new meds, this could go either way 🙄 I’m planning on it being good, time will tell lol.

Seedlings all doing nicely in the poly tunnel.






